The family unit is a vital aspect that contributes to the overall health and well-being of people of determination.
Given the amount of time that young people of determination, especially children, spend time with their families and guardians, it is hardly surprising that family is one of the key players when it comes to promoting the health and well-being of young PoD. This can oftentimes be a challenge for those parents who do not have the essential knowledge and resources to provide the care that their child needs. Similarly, parental insight is vital when it comes to assessing what levels of healthcare provision are already available and what additional effort is needed to bridge the gap, as they have first-hand experiences to these facets of the system. Hence, an understanding of parental perceptions/responses towards children of determination is indispensable in designing efficient interventions targeted specifically towards parents who in return have major impacts on their children.
A study conducted in UAE University investigated parents’ perception of the current status of rehabilitation services provided in the United Arab Emirates. The paper examines parent perceptions regarding obtaining information about rehabilitation services and providers, and highlights their problems and suggestions for addressing them. This study found that parents consider that rehabilitation services need to be advertised more, as lack of information on the rehabilitation service system and service providers constitutes a major problem in service delivery.
Another qualitative study explores the perceptions of mothers in relation to family acceptance and social inclusion issues pertaining to children with disabilities. This study’s findings indicate that social stigma is prevalent in the UAE society and has significant impact on the young PoD as well as their caretakers. However, interestingly, the implications of religion and Muslim piety had a direct positive impact on how the mother and the child were perceived. The rather positive perception is because they are considered the embodiment of inherent family resilience, as well as continued family well-being and cohesiveness.
Understanding parental perceptions of the challenges they face while raising their children of determination is a key component in designing an all-encompassing intervention-based intervention, which can greatly enhance their quality of life. A recent study which discusses selected education and training programs designed to improve parents’ ability to support their children with intellectual disabilities mentions numerous intervention-based approaches. One of them is individualized educational programs that is tailored to a family’s specific needs, as well as methods like behavioral parent training (BPT) that are used to train parents.